Monday, October 12, 2009

Back on Ventilator

Posted 17 hours ago
We thought Brayden was on the road to recovery from his surgery, even after taking 7 days to be removed from the ventilator. Brayden's Grandma and Nana visited with Brayden last night and received a lot of good information about the complexity of his anatomy. He does have a lung infection (pheunomia) and part of his lung has collapsed. As of today he was on 12 liters of oxygen at 100% using the nasal canula.
This morning at appro.9:30 AM we received a call saying that due to his lung not coming back up like it should they are going to reincubate him, in the hopes it will inflate his lung. We immediately went to the hospital and by the time we got there he had already been incubated, and was given a paralletic to help him sleep and keep him from being aggitated, so that he can rest and heal. They hope to only keep him incubated for a few days. The ventilator was set at 28 respirations, and it was doing all the work for him. He was not breathing above that, but that is due to they want to keep him comfortable and the paralletic state he was in. He at one point this morning was trying to wake up, but you could tell he was not comfortable so was given some medication to help him sleep some more until the paralletic wore completely off.
There is still some concern as to whether Brayden has a pulmonary or oxygen blockage problem that is causing his lung to collapse. Not to minimize the issue that he does have a serious heart defect, but not sure if that is causing all the problems at this point or not. Some talk of having to do a trach and we are hoping that does not occur.
Another care conference may be needed in the near future to discuss plans to get him ready to go home. As it stands right now, he is still unable to go home. We did find out that he can go home on a ventilator, although we are praying that does not happen. If they can wean him down on the oxygen to 1 to 2 liters that would be wonderful, as he is already going to have to go home with a heart monitor, oxygen, feeding tube to name a few.

You can visit Brayden's Care Pages at link below, you will need to register with your email address in order to view. You can see his adorable pictures that have been posted and his updates. His Care Page Name is BabyBoyMoore

cp: BabyBoymoore

Sunday, October 11, 2009

Spooky Fest Reposting

This is the latest pic of Brayden with a kit I made last year. We just received a call from the hospital, that they are putting Brayden back on the ventilator as his right lung is now collapsed. We were at the hospital last night till midnight, came home for a few hours rest and now on the way back. He is fighting so hard to stay here with us. Please keep him in your thoughts and prayers.

Links are up, if you did not get it last year.

Enjoy and I hope you have fun with it,

You can get the Paper Pack HERE

You can get the Elements HERE

Saturday, October 3, 2009

Adorable Halloween QP

Brayden had his surgery Wednesday Sept 30, 09. Surgeon came out and talked to us and said he went thru the surgery just fine. Wednesday evening while in CICU he started running a temp of 105. They were able to get that down. He was on a ventilator at 40%; they have weaned him down to 22% as of this morning, and will continue to come down. He cannot come off the ventilator until he is at 10% and breathing above that on his own. We are hoping that will be later this evening or early tomorrow morning at the latest. But Brayden calls his own shots and only time will tell.

While they were doing the reflux surgery they also put his feeding tube in, so thank goodness that will not be another surgery he will have to go through.

They have kept Brayden in a paralytic state, due to him becoming agitated when he is trying to wake up, which in turn raises his heart rate. So in order to keep him comfortable and try to heal as best he can he continues to be sedated with morphine, which does not help the fact that he is a sedation nightmare, as the doctor as noted in his chart.

We are all very nervous, tensed, and stressed over the possibilities, but Brayden is definitely a fighter, and has been since coming into this world. He struggles everyday to stay here and we are hoping he will go to the PICU soon. (Pediatric Intensive Care Unit)

Thank you all for your care, concern, thoughts and prayers. They are working.

I found this adorable quick page on Becky's website and could not resist.

You can download her quickpage HERE

Friday, October 2, 2009

Autumn Rustic Freebie Quickpage

This QP was created from my new kit called "Autumn Rustic". This mega kit is jam packed with over 110 papers and 83 elements. You are sure to find many uses with this kit. This kit was made to help my granddaughter with the expenses of staying at the hospital with Brayden. Any donated amount I will send you the links to download.

Brayden did have his reflux surgery and went through the surgery fine, although he has had some complications afterwards. Right now he is being kept in a paralitic state to help him recover from surgery. When he starts waking up, he is very aggitated and his little heart starts racing. Due to his heart defect that could be very dangerous for him. Tonight he is still on the ventilator and we are hoping tomorrow he will be able to be removed from it. We are concerned about the risk of infection setting in as his temperature is very low tonight, and the risk of him being septic is very scarey. Brayden is a fighter and hoping he can fight this off also.

If you can help us out with any donation no matter what the amount, you will never know how much of a help it will be. The cost of traveling back and forth to the hospital for the past 4 months is really starting to take a toll on us financially. Picture below is a preview of the complete kit.

Without further ramblings here is the link for the QP.
You can download the quickpage HERE