After spending 172 days in the hospital Brayden was moved to Hospice of Atlanta this past Thursday. He is free of all monitors. The only thing he has attached now is his feeding tube and oxygen. You can actually pick him up and hold him now without all the wires and tubes he had in the hospital.
Staff at Hospice has been very understanding and caring while we make the transition. We were hoping to take him home, but Brayden's high flow oxygen requirement is one that is not capable of being performed at home. So we are hoping we can ween him off the high flow down to an acceptable level that we can do at home. For the meantime we are adapting and someone is staying with him at all times, so he is never alone.
He is starting to make little sounds and trying to talk and that is sooooooo cute. He will smile and stick his tongue out when you talk to him. A long time coming for such a small step, but we will take anything we can get.
I saw this tutorial and had to make it to show off this beautiful face.
You can checkout Sandy's tutorial HERE